Having epilepsy and hanging out with friends

Sometimes you might feel that having epilepsy gets in the way of your social activities. You might feel less confident going out in public, or you might avoid taking part in certain sports, in case you have a seizure. You might also feel uncomfortable talking about your epilepsy.

If you find it difficult to meet people, you may find it helpful to get in touch with other people with epilepsy. This way you can share experiences and support each other. Epilepsy Action offers a number of ways you can contact other young people with epilepsy.

 

 

Telling other people about your epilepsy

Deciding when, or if, to tell people about your epilepsy is up to you. You might want everyone to know or you might only want to tell a few people.

At first, you might find it difficult talking to others about your epilepsy. Being relaxed and positive about it will help. Most people find that telling others is a really helpful thing to do. Make sure you know your facts – looking at this website should help.

It’s a really good idea to let your friends know about your epilepsy. That way they’ll know how to help if you have a seizure.

Seeing someone have a seizure can be frightening, especially if you don’t know what’s happening or what to do. Your friends will feel much more confident if you tell them about your epilepsy and what to do if you have a seizure. It’s the same with teachers, tutors, bosses and anyone else that you spend time with.
Be Upfront

If the thought of talking about your epilepsy isn’t an appealing one, help is at hand. Just ask for a free copy of Upfront – the information booklet all about epilepsy, written especially for young people. You can hand it over to your friends and let it do all of the talking for you.

Ways to get your free copy of Upfront

  • Text the word Upfront, followed by your name and address, to 07797 805390 (UK only)
  • Send an email with the word Upfront and your name and address to helpline@epilepsy.org.uk
  • Speak to someone on the Epilepsy Helpline: freephone 0808 800 5050 (if you live in the UK) or +44 113 210 8850 (if you live outside the UK).